The RASopathies Network

Statement on the impact of NIH policy changes for the RASopathies community
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What Are the RASopathies?
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1:1000?

Individually, each of the RASopathies is rare ~ Together they come close to 1:1,000
Learn about the individual RASopathy syndromes

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Approval Announcement: The FDA has approved a second MEK inhibitor developed by SpringWorks Therapeutics for the treatment of plexiform neurofibroma […]

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Trametinib as a targeted treatment in cardiac and lymphatic presentations of Noonan syndrome Systematic Review De Brouchoven I, Lorand J, […]

RASopathies Network USA News Post

February 2025: A message from the President of RASopathies Network: RASopathies research is being threatened. Read on to educate yourself […]

Statement on the impact of NIH policy changes for the RASopathies community

What Are the RASopathies?

1:1000?

Syndromes

Clinics

Meetings